Ehlers Danlos Syndrome

What is Ehlers Danlos Syndrome Care

Stephanie sees many patients with EDS and overlapping conditions including dysautonomia, Raynaud’s, persistent pain, and MCAS. Stephanie’s hEDS diagnosis did not come until her late 30s, and when she received this diagnosis, it confirmed and validated her symptoms and provided an explanation for many questions that had previously been unanswered. Because of her life experiences, she is able to help and support patients in a unique way and has developed a local care network of physical therapists, massage therapists, acupuncturists, and mental health experts who she is able to recommend through personal experience. Additionally, we partner with Invitae for genetic testing of connective tissue disorders to help develop the best treatment plan and guide safe care for patients.